UNIVERSITY OF CALIFORNIA, SAN FRANCISCO
CONSENT TO BE IN RESEARCH
Study Title: Quality of Life in Thyroid Cancer Patients during the COVID-19 Pandemic
This is a research study, and you do not have to take part.
You are being invited to participate in this research study because you are over the age of 18 and are accessing the ThyCa website, or reading ThyCa communications, during the current COVID-19 pandemic.
In this study, the researchers are doing a survey to learn more about your feelings and worries during the COVID-19 pandemic. For the purposes of this study, “COVID-19” will refer to the currently circulating pandemic strain of coronavirus, sometimes also referred to as “SARS-CoV-2.”
What will happen if I take part in this study?
If you agree to join this study, you will be asked to complete a short anonymous survey, which should take approximately 10 minutes. No identifying information will be collected.
How will my information be used?
Researchers will use your anonymous information to conduct this study. Once the study is complete, we may share this information with other researchers so they can use it for other studies in the future. We will not ask for your name or any other personal information that would let the researchers know who you are. We will not ask you for additional permission to share this anonymous information.
Are there any risks to me or my privacy?
Some of the survey questions may make you feel uncomfortable or raise unpleasant memories. You are free to skip any question. No identifying information about you will be collected.
We will do our best to protect the information we collect from you. The survey itself will not include details that directly identify you, such as your name or address. Please do not put this information on your survey.
Authorized representatives from the University of California may review your research data for the purpose of monitoring or managing the conduct of this study.
Are there benefits?
There is no benefit to you. The survey results will be used for research.
Can I say “No”?
Yes, you do not have to complete a survey.
Are there any payments or costs?
You will not be paid for completing the survey. There are no costs to you.
Who can answer my questions about participating in the study?
You can contact the study researcher about any questions, concerns, or complaints you have about this study. Contact the study researcher Claire Graves, MD at claire.graves@ucsf.edu.
If you wish to ask questions about the study or your rights as a research participant to someone other than the researchers or if you wish to voice any problems or concerns you may have about the study, please call the office of the Institutional Review Board at 415-476-1814
You may wish to download a PDF of this consent to keep for your records.